My husband is a huge baseball fan. We joke in the south that women are "football widows" because their husbands are so wrapped up in the game. However, I'm a "baseball widow." From the time of spring training to the World Series, baseball seems like it's more important than me. (For the record, I know that's not true, but at times it feels like it.)
Anyway, we both love to shoot sports, so when we got the chance to shoot the Birmingham Barons, a minor league AA team, we were excited. Honestly, we were both excited, but obviously his was at a greater level.
We didn't have press passes that would get us in the dugout so we had to shoot from the stands. In the infield area, there is a mesh screen in front of the stands that protects the fans from getting hit by stray balls. However, there are a few places that allow for cameras.
I quickly found one of those places that was good enough and decided to stick there while my husband explored to find the best spot. We had arrived early so that we could get those prime areas and, as I always do when I'm bored with my camera nearby, I looked for something to shoot.
After shooting some boring stuff, like the row of empty bleachers, I looked to my left and saw the cutest little girl in a too-big jersey holding a Barons foam finger almost as big as she was. I quickly took the photo... and was incredibly happy with the result.
As I've done many times before, I went to her parents to show it to them. I gave them my card and said that if they wanted it, they could have it.
I had no idea what was about to happen.
Her mom gave me a little bracelet with alphabet beads on it that spelled out the word "Limitless" as she started explaining that her daughter wasn't just an adorable child with a foam finger. There was much, much more going on.
I found out this cute little girl has a very rare disease.
After having a rough start into the world - with complications during birth - she had a seizure when she was just two months old. She continued receiving different diagnoses from various doctors as she grew, and after years of not knowing what was going on, genetic testing revealed she has an SPG11 gene mutation, a very rare condition like ALS/Lou Gehrig’s Disease.
They make it through the endless (and expensive) doctor's visits by selling the Limitless bracelets that they make as well as donations.
I ended up writing an article about this little girl for a newspaper I submit to so I got to know a lot more about her. This was several years ago and though it's still a battle she and her parents are constantly fighting, she has surpassed all of the limits doctors and diagnoses originally put on her.
If you want to learn more about this special child's journey and progress, look up “Bryn’s Bunch” on Facebook or
email them at brynsbunch@yahoo.com.
(All images by Tracy Riggs Frontz)
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